I had a plan to write a New Year’s blog which was obviously interrupted. That’s the thing I’ve learned, sometimes God stops me. He puts ideas and thoughs on hold or changes the direction of my writing entirely.
As 2017 came to a close, I was reminded of how it began. Laughter and joyous celebration. The anticipation of a new year. The thankfulness in our hearts because Ned was doing well and looking forward to sharing another year with him.
As we moved into February, I felt the spirit of God working and moving in our lives. During this time, I received an unexpected text from a dear One asking me to pray about starting a Bible Study with her. I didn’t need time to think or pray about whether this was God’s will or desire. I had already been praying for a year and a half for God to open up the doors for a Bible Study.
In March we began our study with Finding I Am by Lysa TerKeurst. In this study, like the title suggests, we were encouraged to find and explore the I Am statements that Jesus makes about himself through the Gospel of John.
The most memorable declaraione for me,personally, is the following:
I am the good shepherd .
John 10: 11-18 New International Version (NIV)
11 “I am the good shepherd. The good shepherd lays down his life for the sheep. 12 The hired hand is not the shepherd and does not own the sheep. So when he sees the wolf coming, he abandons the sheep and runs away. Then the wolf attacks the flock and scatters it. 13 The man runs away because he is a hired hand and cares nothing for the sheep.
14 “I am the good shepherd; I know my sheep and my sheep know me— 15 just as the Father knows me and I know the Father—and I lay down my life for the sheep. 16 I have other sheep that are not of this sheep pen. I must bring them also. They too will listen to my voice, and there shall be one flock and one shepherd. 17 The reason my Father loves me is that I lay down my life—only to take it up again. 18 No one takes it from me, but I lay it down of my own accord. I have authority to lay it down and authority to take it up again. This command I received from my Father.”
It reminds me of my deep need for a shepherd. One who protects me from danger. One who looks for me if I lose my way. One who calls my name and I hear his voice and I know Him and He knows me. Most importantly one who is willing to sacrifice His life for me. I am just a sheep in desperate need of shepherd.
It’s no coincidence that at the time we were studying this particular statement that Ned’s condition would begin to turn iffy. His breathing quickly becoming more labored. CAT scan would reveal swollen lymph nodes. Bronchoscopy and biopsy confirms cancer has returned. His fear. Mom’s fear. Our greatest fear confirmed. Our hopes quickly dashed. Disappointment set in. But wait! There is hope. Hope is always there. Why? Because Jesus always there. He is our Good Shepherd and He will never leave us, even in the most trying and difficult of days.
A few days before Ned’s CAT scan would reveal the swollen lymph nodes, Alex graduated from Blue Ridge Community College with his Associates degree. Mom and Ned were able to be there to celebrate with him. Ned was complaining o shortness of breath but still managed to walk a mile to watch Alex graduate. The blessing and joy of being there for Alex, outweighed any struggles he was having that day, Again, the Good Shepherd providing for his sheep.
At the close of May, our daughter Amy would make conference for WCU Track & Field . Mom and Ned were unable to attend this event. However, Terry and I were able to go for the two-day event and watch as Amy finished 9th in Hammer Throw, 7th in Shot Put, 8th in Discus and Javelin Throw, We had a more cause to celebrate and see how Jesus was graciously caring for us.
The molecular testing on Ned’s biopsy showed that he was. “Great candidate” for the drug Keytruda. His efficiency PDL-1 rating was 90% indicating the overall response of his cancer to the drug would be favorable. The overall side effects were substantially fewer, a lot less than his previous chemotherapy treatments. Overall response of current patients using the drug e was also favorable.. Obviously there were risks and they were clearly and audibly disclosed. I sat in the office with Ned as Kate Kennedy, Dr. Anthony’s P.A., discussed them. The percentage of severe risks were extremely low, The drug, by all appearances, would be a perfect match for him. On June 13th I sat with him while his first treatment was administered. He was excited at the possibility of this new treatment being just right for him.
It wouldn’t take but a few days before Ned developed a rash and intensified cough. Side effects, common ones, from Keytruda. Fortunately, the initial dose of prednisone cleared his rash. It didn’t do much for the cough. After the second round the rash returned and the cough remained. It was irritating and uncontrollable at times. There would be random outbursts. Periods of lull but nothing completely diminishing the cough. This time they gave him more stronger dose of steroids and added some cough suppressants. The cough becoming a total nuisance began causing pain in his right side and back. But it was too early in the ballgame to make a judgement call on the effectiveness of the Keytruda. We all felt highly confident in the advice and assessments given from. Dr. Anthony and Kate. We knew Ned was in good hands. Another wonderful provision from our Good Shepherd.
The day after Ned’s third round of Keytruda, Alex went over the visit. He was leaving for college on Friday. He came home and said, “Mom, Papaw is pitiful. I’ve never seen him so weak. Something is right”. I told him it was probably just due to the treatment from the previous day and I would check on him the next day.
Wednesday was a better day. I didn’t get too worked up. He said he just felt tired and if he could get rid of that “stinking aggravating cough, he would feel better”.
I decided to start researching every medication and supplement he was currently taking. Looking at all the common and non-common side effects. Dang! Getting that involved in drugs and their side effects will cause you to question the value of medication.
On Friday, Alex and Amy both went to visit before Alex’s departure. They came home saying , “Mom, Papaw isn’t well. He’s so weak he struggles to get out of his chair.” Now, one thing to understand about my kids is they’re not the melodramatic type. If anything they are fairly low key and don’t get worked up quickly. So, I knew it wasn’t good,
We decided to go by on Saturday before we took Amy to school, just to check on him. He said he felt a little better but I wasn’t convinced. He looked terrible. His side and back were in excruciating pain. He wasn’t able to sleep in his bed. He found more comfort on his chair or the couch. When we got ready to leave with Amy, she bent down to give him a kiss. That wasn’t good enough for him. He said, “Hang on, I’m getting up so I can hug you before you leave.” At that moment, when I watched how challenging it was for him to stand, I knew things were on a downward slope. This just wasn’t our Ned or Papaw.
Due to taking kids back to back days to college, Terry and I already decided to forgo driving to Greenville to church. We went out for a celebratory breakfast and predetermined to go check on Ned. Before we got to our breakfast destination I got a picture test from Mom. Ned was sitting slouched over at the table. Arms crossed and head down. Caption read: He tried to come sit and take his meds.
As soon as we get there, their dear friends are already there checking in. They had seen a substantial decline since Thursday. They were concerned. We were all concerned. Ned was being stubborn and refusing to let Mom call the doctor.
Did I tell you that Ned met his match for stubbornness when he crossed paths with me? If not, he did! I didn’t just insist he call the doctor. I called for him. With him in the background saying, ” I don’t know why you’re bothering to call. There’s nothing they can do.”
Dr Anthony was quite perplexed when I shared with him the radical decline. He tried to get Ned to go to the ER. Ned convinced him that he didn’t need to go and would be ok until he saw him the next day. Reluctantly, Dr Anthony agreed.
Thus began the poking and prodding to find the cause. After researching Ned’s symptoms and side effects Keytruda as well lab results. It was discovered that Ned’s body was not tolerating the Keytruda and it was creating an adrenal insufficiency.
Obviously, Keytruda would be stopped and full intent to go back on chemo drug Alimta. However, the symptoms needed to be managed first. The only problem with symptom management was the need for other drugs. The need for other drugs constituted various other side effects. Yet, hope remained.
A bone scan revealed 3 distinctive spots not present during a previous bone scan. The cancer was now metastatic and would need to be addressed sooner rather than later. However, Ned’s body was not strong enough for treatment due to the side effects from Keytruda. Keep in mind the side effects Ned had were not common. Only a very small percentage of patients develop these issues. Like the rarity and uniqueness Ned’s cancer, his body reacted to drugs the same way.
On September 13, Kristi, my sister would call and FaceTime me to show me how pitiful he was. He had barely talked, wasn’t eating, couldn’t get comfortable. He and mom sitting on the couch. He was slumped over and she was sitting with her arm around his slumped shoulders. I told Kristi that I was calling the doctor.
This call would result in EMS coming to get him. He would not return home. Well, not his earthly home.
At some point, God will probably open my mouth to share about the last 6 weeks of his life but many parts of that story are still raw and painful. Suffice to say, he was blessed with good care everywhere he was taken. Jesus, the Good Shepherd continuing to provide.
On October 29, God called him home and he gladly went. His body was tired. His fight was long and hard. We Had hooked beyond all hope that God will heal him here on earth. God said, “No! His work is done here and I want him with me”.
All during and through Neds illness and death our family witnessed a huge outpouring of deep love and support from family, friends and former co-workers. Again, The Good Shepherd giving us all we need. Protection. Food. Love. Comfort. Sacrifice.
The key thing about Jesus, The Good Shepherd, is that he was willing to lay his life down for yours. When dark shadows refuse to reveal light. When the tests are screaming bad news. When your bank account is dry. When your hope runs on empty. When you feel like you can’t go on. Remember. Jesus paid it all. He felt everything you are feeling. He’s the only one who fully knows and understands. Because of the high price he paid for us, He is our hope. He is our joy. He is our Good Shepherd, if we’ve put our hope and trust in Him by inviting Him into our hearts.
Look how David so eloquently describes the Lord as his Shepherd.
In closing, 2017 will go down in the yearbook as one of the most difficult years on record for me and for my family. However, even through the most challenging times, the many tears we cried, watching our loved one lose his life, Jesus was and continues to be our constant source of strength and hope.
A big thank you to all who continue to read my blog. I’m not sure where 2018 will take us, but I know that God already has it mapped out. As He leads, I will continue to write.